Documentary Style
TopicalTake Care of Maya
What happens when rare disease meets a healthcare system unprepared to understand it. A harrowing story that resonates with every family navigating a challenging diagnosis.
Year
2023
Type
film
Runtime
104 min
Language
English
Director
Henry Roosevelt
Genres
Summary
When ten-year-old Maya Kowalski was admitted to Johns Hopkins All Children's Hospital in 2016 with a rare, debilitating condition, nothing could have prepared her family for what came next.
Unable to understand Maya's Complex Regional Pain Syndrome, doctors suspected her mother of fabricating her daughter's illness. Florida's privatized child protective services removed Maya from her parents, triggering a legal battle that would devastate the family. The film follows their desperate attempts to prove Maya's diagnosis and navigate a system with unchecked power over their lives.
What happens when rare disease meets a healthcare system unprepared to understand it - and a privatized child welfare system with the power to destroy families.